I am a little embarrassed to admit that I had never heard of Lewy Body Dementia (LBD) before today. I would like to think that I have included care and facilities on this site for all types of dementia, but I have failed to mention this type anywhere on the site.
It has an interesting and unique name, which is why I am surprised I had never heard about it.
I came across a great site today that is dedicated to Lewy Body Dementia. Basically, this disease is described as “a progressive brain disease and the second leading cause of degenerative dementia in the elderly. The clinical name, “dementia with Lewy bodies” (DLB), accounts for up to 20% of all dementia cases, or 800,000 patients in the US. Over 50% of Parkinson’s disease patients develop “Parkinson’s disease dementia” (PDD), which accounts for at least 750,000 patients. (PDD is also a Lewy body dementia.)”
I don’t know yet if there are any assisted living facilities that care specifically for LBD, but I’ll try to find out and list them in the appropriate places on my site.
For those suffereing from Lewy Body Dementia, or for the loved ones of those struggling with this disease, I apologize for not representing you on the site. I’ll get to work on it.
Here is an interesting video clip that talks a little bit about the difficulties in diagnosing this disease.
It is so funny that you wrote this today, since I also came across the LBD blog yesterday and was very impressed with the caregiver tips that they had provided! I love coming across a new great resource, it is like finding a treasure!
Jill C.
http://www.caring.com
Greetings, you not the only one two whom LBD is an unknown entity..My husband was diagnosed with this “probable” disease in 2003. Our Carmen Foundation
has been supporting the research of MIND (in Boston/Charlestown MA), The MJ Fox Foundation, The LBD Association, and several other educational programs in Boston and here in Bend, Oregon.
It is our job to make the general public aware of the individuality of LBD and it variations.
I can be reached through mcarmen@bendbroadband.com if anyone wants more intormation, or just to connectl
blessings to you, Marjorie Carmen
Thank you everyone for your great comments and responses.
Thank you Marjorie and Jill.
Wishing everyone a great Thanksgiving..
David